Our Mission
It’s a Rare Story is a podcast dedicated to amplifying the voices of those living with rare diseases and disabilities. Hosted by Sarah, who underwent a life-changing bone marrow transplant for an ultra-rare Glycoprotein Storage Disease, Alpha-Mannosidosis, this channel features powerful stories of resilience, hope, and determination. Hear how individuals navigate their unique journeys and learn that a diagnosis doesn’t define their future. We believe in the strength of shared experiences and the power of living life to the fullest, no matter what. Subscribe to join our community!
If you have a story you’d like to share, fill out this interest form and we will be in contact with you shortly!
Achieve the Impossible Today 