Where Have I Been? – Life Update

Life Happens

Life has gotten a tad crazy. Hence, me not writing anything for the past couple of months. I could bore you with every single detail, but I won’t do that! I will be writing about what the past couple of months have consisted of and where we are going in the future.

March Update

I haven’t written anything since March which is mind blowing! I am here writing this on the last day of June. For me, March was a very crucial month. I virtually went to a Tony Robbins seminar, started learning more about Alpha Mannosidosis (what I was born with), started process with new doctor for brain stuff, super involved with church activities, and read two books. There were a lot of moving parts to all of these exciting events.

April Update

For the month of April, it was incredibly awesome to see how God was moving through everything that I was doing during the prior months. We had gotten some answers in regards to what I feel on a daily basis due to my brain. I started going to my new doctor consistently, which has paid off! Chi Alpha ended for the school year which was a big sad. Started sewing again by making repairs to clothes. Wanted to read several books, but I did get to read one book!

May Update

Fast forward to May and it was a pretty non-eventful month. Went to the beach with my dad a few times, worked on establishing new friendships, and went to some bible studies for the last time. I sewed a dress (the one pictured) and threw a pretty awesome surprise graduation party for my mom. I did not complete any books, but was working on some.

June Update

We have finally made it to June! June has served us a plate of joy and peace with a side of frustration and tears. My birthday was June 3rd and I had the amazing opportunity to get involved with the youth ministry at my church the day before my birthday. I spent months praying for this day to happen and it was everything that I ever had wanted to experience. I had a blast and now I am an official youth leader. I’ve spent the month hanging with friends, playing tennis, and adapting to life. I also was able to complete one book! Fun fact: a day after my birthday, I started taking a social media break that will last the whole entire summer.

My doctor that I go to is very intelligent in what she does and is always looking into things if they aren’t looking right. We (my parents and I) found out that the way my brainwaves are…indicate a lack of blood flow in the left part of my brain. She believes it could be from what I was born with. With this new information, we are taking steps to help increase the blood flow. I am working on eating a clean diet, not overdoing it, and having low stress levels.

This past month I have switched from the typical American diet, but a tad healthier (organic foods) to a plant-based and gluten-free diet. In all honesty, I have been working towards this type of lifestyle since March. Maybe I will make some blogs about my plant-based meals?? For now here are some pictures 🙂

One of the most difficult things I am encountering at the moment is learning how to not overdo it. I have always had to work harder than the typical person due to the various cognitive issues I’ve experienced. Due to this, I am so used to pushing and constantly doing things. I am working on figuring out a routine that will allow me do things and enable me to not overdo it. It’s hard for me to know when to stop and when to keep going.

Next Steps

So… I said earlier in this post that it would also include some next steps and where we are going. With looking at my routine, I have come to the realization that I want to include writing. I absolutely love writing and it’s one of my passions that I did more! With saying that, I will definitely be writing more. Not exactly sure what you will find here, but you will find new posts! I will possibly try to post one blog every week (probably Friday afternoons), if not it will be one blog every other week.

I am looking forward to writing more, sewing, learning guitar, making food, and will be working on a page that will have information on what I was born with (Alpha Mannosidosis) shortly. I hope to have it up and running by September or October! I want it to be a space for people to learn about it whether they or their child has been diagnosed or for the everyday person to learn something new. Excited for all of these new changes!

Thank you for taking the time to read this post! If you have any suggestions on what I should make next, write about, or anything in general, let me know in the comments! I’d love to hear your thoughts. I’ll see ya soon on the next blog post 🙂

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