Tag: raredisease
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22 Years and Counting…
Welcome back to the blog! Life since my last post has been a bit crazy and wild. This is the typical yearly post that I do in regards to another year since I went through a Bone Marrow Transplant (BMT) for a rare disease called Alpha-Mannosidosis. This years post will be a bit different, but…
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Rare Disease Day 2025
Well, it’s been a year since the last Rare Disease Day!! Time is flying very quickly these days. If you’re new here, welcome!! My name is Sarah and this is my little space on the internet where I share about life post-bone marrow transplant. Today is a day where everyone who has been affected by…
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21 Years…
This is a special blog post I wanted to share with y’all. Today I am celebrating 21 since I had a bone marrow transplant for a rare disease I was born with Alpha-Mannosidosis. This disease is a Glycoprotein Storage Disease and affects every single cell in the body. If you think of a challenge, I…
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Learning to Be Still in Him
Hello! Welcome to Achieve the Impossible Today. If you are new, so happy you found this blog!! If you are returning, welcome back! This is a blog where I share share my journey through life with Alpha Mannosidosis. I am in a season of complete healing and this week I am talking about the journey…
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Stepping Into Patient Advocacy
Welcome to Achieve the Impossible Today! I am so excited you found this blog post. I am working on sharing my journey with Alpha Mannosidosis on my blog with weekly/bi-weekly posts. This weeks post is all about my journey from being someone born with Alpha Mannosidosis to becoming an Alpha Mannosidosis Patient Advocate! Patient Advocate?…
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Things Are Not Coincidences
Welcome to Achieve the Impossible Today! So glad you stumbled upon this blog. I *try* to post a blog every week, but that does not always happen. I am writing about all things on my journey with God, Alpha Mannosidsosis, and what I am up to in life. This week’s post is really explaining how…
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A Trip to Boston!
Life’s been a bit hectic recently. Went to Boston six weeks ago, started seeing a new dr (chiropractic neurologist), teaching a friend how to sew, made some shorts, appointment at CHOP, finished up an internship, and some crazy life changing God moments. I am not sure if I got it all! Invited to Boston In…
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Healing is on its way 🙌🏻
Welcome to Achieve the Impossible Today! It’s been a little too long since the last time I posted something… In this week’s blog, I am diving into the new doctor I am seeing as well as the healing that has already started. I love how God times everything perfectly and never misses a beat in…
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Processing Experiences of Every Day Life
Hi!! Welcome to Achieve the Impossible Today. This week I am speaking about how my life is. It is a tad different from the typical 23 year old, but I love that my life is unique. There are no words to describe what I am experiencing on a daily basis. I have to be cautious…
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Rare Disease Day 2022
Hello!! It’s been way too long since I have written a blog post. In writing this, God has just shown me what He has done in my life over the past 22 years. I…
Achieve the Impossible Today 