Processing Experiences of Every Day Life

Hi!! Welcome to Achieve the Impossible Today. This week I am speaking about how my life is. It is a tad different from the typical 23 year old, but I love that my life is unique.


There are no words to describe what I am experiencing on a daily basis. I have to be cautious of the amount of things I do, so I don’t overdo it. I don’t have a job (although I am doing an internship through school), I don’t live by myself or with friends. There’s a lot of things that I don’t do that someone without Alpha Mannosidosis would do.

BUT…
I do have friends.
I do go to school part-time.
I do serve on a nonprofit board.
I do have a blog.
I do speak to families around the world.
I do enjoy sewing, cooking, baking, and reading.
I do go to church.
And a million other things…

My life may look different, but I am so glad I have a fantastic quality of life. I might not do the typical things someone my age does, but there are numerous things I do get to do instead.

I am just grateful to be standing here to day and sharing my story with you. I think about where my life could be if I didn’t have a bone marrow transplant to stop Alpha Mannosidosis from progressing. Every time, I am so thankful for all of the healing that has taken place and that is currently taking place.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

Healings

Hello there! Welcome to the Achieve the Impossible Today blog! Typically, I post every Saturday, but that is not the case this time. Life’s been. tad crazy and so this was supposed to be posted 2 weeks ago… This blog is all about sharing my walk with God and how He has transformed my life even when I didn’t know Him. We serve a God who does the impossible and it’s easy to forget that with the world in which we are living in due to all the technology and conveniences we have access to.

Here’s some back story

I’ve been on quite the journey. Life has its challenges, but it also has those moments of rejoicing. For those of you who are new, welcome! Let me explain, I was born with a rare disease, Alpha Mannosidosis, and I received a bone marrow transplant at the age of 4.5. This rare disease affects every cell in the body. For me, this disease affected my brain severely. I am able to function as a human being, but I have difficulties with having the typical job, driving, and having to be cautious of the amount of activities I do in a day.

My journey in life did not always have God in it. I grew up Catholic and then stepped away because I felt I was wasting my time. I would almost fall asleep at church because it was boring to me. Jesus met me at a church my friend took me to in 2018. He caught my attention and I just wanted to learn more and more.

At this time in my life, I was going through a very dark period with depression. I will spare you the details, but it was not a fun time. I was also recovering from a major car accident that had happened in 2015. With what I was born with and a concussion from this car accident, lets say it complicated things quite quickly. My vision would blur and was not able to read for weeks and then months and then years… I was also having some hormone issues due to the chemo drug that was used for my bone marrow transplant.

Where we are today…

Alright, you have some back story now. This is the super shortened and quick version of about 19 years of my life. That’s just weird to write… Jesus met me four years ago (coming up in August). Woah!

Because of Jesus I no longer…
-experience depression
-identify as Bisexual
-experience blurry vision
-have a low chance of having kids in the future

As I type this, I am in a spiritual battle fighting against my other symptoms I experience. I am believing and the church around me is believing in a complete healing. Until we get there, I have to keep praising Him, worshipping Him, speaking to Him, and playing/singing to Him through my guitar. We can’t get to the days we prayed for unless we walked through them with Jesus.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

Be Still

Welcome to Achieve the Impossible Today! This week on the blog, I am talking about the craziness of life and staying still during all the trials and challenges.

Some of you may know that I was born with a rare genetic disease called Alpha Mannosidosis. I had a bone marrow transplant when I was a four and a half. It stopped the disease from progressing, but left what the disease had done previously. One of the things I face still to this day with this rare disease is difficulties with my brain…

Throughout life, I have learned how to keep pushing myself and always tried to keep up with my peers. All this pushing is detrimental to my brain. I forget majority of the time that I can not do the amount of things other people my age do. I forget so easily because of the memory issues I also deal with.

This past week I have done so many things, that I am extremely grateful for. I am paying the price for it now though… Some of these activities included hanging with a friend, attending masterclass at True North (my church), going to appointment at CHOP, attending a housefire church, schoolwork, and a few other things. These events were all in a three day period and of course I was tired.

During worship at the housefire church, God was helping me to process my CHOP appointment and brought Psalm 31 to mind. I have typed it below (it’s longer than expected), but it was exactly what I needed to hear in the moment and is a great reminder.

In you, LORD, I have taken refuge; let me never be put to shame; deliver me in your righteousness.
Turn your ear to me, come quickly to my rescue; be my rock of refuge, a strong fortress to save me.
Since you are my rock and my fortress, for the sake of your name lead and guide me.
Keep me free from the trap that is set for me, for you are my refuge.
Into your hands I commit my spirit; deliver me, LORD, my faithful Go.

I hate those who cling to worthless idols; as for me, I trust in the LORD.
I will be glad and rejoice in your love, for you saw my affliction and knew the anguish of my soul.
You have not given me into the hands of the enemy but have set my feet in a spacious place.

Be merciful to me, LORD, for I am in distress; my eyes grow weak with sorrow, my soul and my body with grief.
My life is consumed by anguish and my years by groaning; my strength fails because of my affliction, and my bones grow weak
Because of all my enemies, I am the utter contempt of my neighbors and an object of dread to my closet friends — those who see me on the street flee from me.
I am forgotten as though I were dead; I have become like broken pottery. For I hear many whispering, “Terror on every side!” They conspire against me and plot to take my life.

But I trust in you, LORD; I say, “You are my God.”
My times are in your hands; deliver me from the hands of my enemies, from those who pursue me.
Let your face shine on your servant; save me in your unfailing love.
Let me not be put to shame, LORD, for I have cried out to you; but let the wicked be put to shame and be silent in the realm of the dead.
Let their lying lips be silenced, for with pride and contempt they speak arrogantly against the righteous.

How abundant are the good things that you have stored up for those who fear you, that you bestow in the sight of all, on those who take refuge in you.
In my alarm I said, “I am cut off from your sight!” Yet you heard my cry for mercy when I called to you for help.

Love the LORD, all his faithful people! The LORD preserves those who are true to him, but the proud he pays back in full.
Be strong and take heart, all you who hope in the LORD.

Psalm 31 NIV

Due to how I have been feeling, I have done absolutely nothing. It is really hard when I get like this. I am a completely different person and do not feel like myself. I am glad I have been able to get this blog out (even if it is later in the day than typical). Here’s to feeling better next week and getting back to normal life.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

Goodbye 22, Hello 23

Well friends, yesterday was my 23rd birthday. Crazy to think I’ve completed another year around the sun as human being here on planet earth. This 22nd year has brought joy, happiness, challenges, and a million reasons to be grateful.

I’m excited to look back and remember where I was and how God has moved within my life during this 22nd year. Looking back at what has happened helps me to remember life in general. It is also a great way for me to document since this is a blog post 🙂

Some experiences…

  • Served at True North’s Youth Ministry
  • Attended The Holy Spirit Masterclass at True North College
  • Went to a friend’s wedding
  • The Rona got me 😦
  • Shared my Alpha Mannosidosis story to families across the world
  • Went vegan for a few months
  • Invited and started serving on ISMRD board
  • True North Youth Summer Camp
  • Football game at Rowan University with Chi Alpha
  • Neurofeedback transitioned to doing at home
  • Chi Alpha Fall Retreat
  • Celebrated 18 years since bone marrow transplant
  • Trips to Longwood Gardens
  • Video made for sharing my story with Alpha Mannosidosis
  • Started seeing a nutritionist
  • Learned how to tune and worked on learning guitar
  • 2 online classes
  • Parent’s got baptized
  • Taught others to sew
  • Completed sewing a romper 🙂

There’s been so many fun and exciting things that have happened. Even though there are so many amazing events I’ve been able to be apart of, there have still been lots of challenges along the way. Due to Alpha Mannosidosis, I still have some brain issues and have to be cautious of how I am feeling. I constantly have to assess if I am doing too much and have to take frequent breaks. I am grateful with where I am in life because my life could be completely different.

Learning Experiences

  • Trusting God with what He calls me to
  • Learning to listen to Him even if He says no to something I love
  • Resting in His presence

Opportunities in Sharing My Story

Feel free to click the link to view the blogs/video 🙂

23 Here We Come!!!

I am very excited to be entering into a new year of life. This year I am hoping to continue learning and just trusting in what God is calling me to do in this life. My life looks a lot different than a person who wasn’t born with Alpha Mannosidosis, but that is okay. I am praying for opportunities to connect with others and just to continue sharing my story.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

A long lost hobby has been found again :)

Hi friends! Welcome if this is your first time, also welcome if you are returning 🙂 This week I wanted to share something that I have been working on for quite some time. Drum roll please… I MADE A ROMPER!!!

This is my first project that has been completed in 2022. I am working on getting back to my sewing days and to be honest, probably should have started with an easier project! Just glad this turned out good.

The romper was one of the most complicated pieces that I have done in awhile. In this project, I basically had to make a top piece and a bottom piece. The bottom piece also had pockets. There were many challenges to this, but super proud of the turnout. At first, I did not like it (hard to believe). But it grew on me and it is definitely going to be one of my most worn outfits in my closet 🙂

I have posted several photos of the whole process.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

A Transformation I Never Imagined…

Hey there! Welcome if you are new & welcome if you’ve been here previously. Some of you may know this, while others may not. May is Mental Health Awareness Month and I thought this would be a great time to share my journey through depression. I will occasionally share this story and of course do not want to overwhelm you with one part of my life. God really took me from the valley and created a whole new person.

*If depression or mental health topics are hard for you to read, just stick around until the end of the next paragraph 🙂

God sees where you are and absolutely adores you. You may not see a way out of the journey you are on, but He does. He sent His one and only son, Jesus to die for all of our sins. He doesn’t want you to suffer. His arms are wide open to you because He loves you oh so much. He has called you by your name ❤

The Lord is my shepherd, I lack nothing.

He makes me life down in green pastures, he leads me beside quiet waters, he refreshes my soul.

He guides me along the right paths for his name’s sake.

Even though I walk through the darkest valley, I will fear no evil, for you are with me; your rod and your staff, they comfort me.

You prepare a table for me in the presence of my enemies.

You anoint my head with oil; my cup overflows.

Surely your goodness and love will follow me all the days of my life, and I will dwell in the house of the Lord forever.

Psalm 23 NIV

A Recent Revelation

2022 –> 3.5 years of knowing God, joyful, life giving, so many wonderful friends
2017 –> suicidal, depressed, anxious, sad, self harm, no friends

He turns graves into gardens. It is amazing to see what He’s done in the past 3.5 years. I am finally stand-in ton my two feet only because of His grace. I am in a season of listening to what He is calling me to. Most recently, He has been waking me up early and putting the desire of reading His Word (aka the Bible) first thing before I do anything else.

How this has happened…

I could go on and on about how this has happened, but to put it plainly it resulted from people who spoke life into me and God moments.

Back in 2017 I was not following God. I thought my life was practically over even though I had just graduated from high school. I was in a season of life that was filled with feeling super lonely and worthless. I refused to take any medication that could help the depression and what I was experiencing.

In 2018, I was still experiencing depression, but it wasn’t as bad as 2017. My friend asked if I wanted to go to church and I said yes. That yes ultimately changed the trajectory of the rest of my life. God met me at that church service by showing me a memory from when I was younger and in the hospital (I had no memory of what I went through). I was hooked and wanted to learn more about this whole christianity thing. I started attending church regularly.

In 2019, God placed Godly women into my life and found the church I call home still to this day. 2019 was the year that the depression and everything else that I was experiencing went away. At first, I didn’t realize the depression had gone away. But it did and I no longer had any thoughts, anxiety, sadness,

Since I have been connected to an amazing community through church, I have grown tremendously. My heart is so full and I am so thankful to where God has placed me. I am working on trusting that His plan is better than mine. In reality, it is. I am so excited to continue sharing what He places on my heart.

In a challenging season??

If you find yourself in a challenging season, lean into Him. He will help you through His Word. His Word is the truth and what we all need to be hearing daily. In His Word, you will find that He sent His one and only son to die for your sins. He loves you so much. This world can be very overwhelming and confusing. When we seek Him, He will help us in every way that we need.

Praise be to the Lord, for he has heard my cry for mercy. The Lord is my strength and my shield; my heart trusts in him, and he helps me.

Psalm 28:6-7 NIV

Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

My Story & God

Hello! It has been an exciting past few months in my world. A video has been published to share my story with being born with Alpha Mannosidosis. It has been a long time coming, but it is finally out. I am excited, but still a tad shy about sharing.

Truth is I don’t want the spotlight all on me. It is not about me. It is about Him. This story wasn’t something that I have created. It is something that I have experienced. It is something my parents experienced. This story solely comes from God.

All the glory goes back to God.

He knew that the genes my parents would cause a genetic issue. He knew everything I would experience with being born with Alpha Mannosidosis. He knew I would go through all the trials and tribulations. He knew I would constantly smile. He knew I would be where I am today. With all this being said, I don’t want this video changing the way you view me. This is my story and there is a lot of hope that can be found. Hope for a future. Hope for living a life you weren’t promised.

Through the interview process to the photos that were taken, it was a tremendous experience. I am so glad with what they’ve captured and shared in the video. The story is definitely a hard one to consolidate into a 4-5 minute long video. Years and years of information crammed into that short amount of time. They did a fantastic job. Am I glad we have a video to easily share my story? Yes, absolutely!

If you would like to watch the video, go right ahead. I’ve attached it 🙂

Life got very busy and I’ve been quiet…

Hello friends! It’s been a little quiet here on the blog. My life got busy. I am really working on posting weekly to this blog. I absolutely love writing and sharing how I am ‘Achieving the Impossible Today”. haha get it 🙂 Anyways, let’s get to it!

New Seasons

If you are human, you’ve probably noticed that you go through different seasons during life. There may be times in your life when you are busier, happier, frustrated, or whatever it may be. New seasons can be scary, exciting, and joyous. There are new things you have to get used to and some things you have to say goodbye to (don’t worry, I am not getting rid of this blog anytime soon!!).

My life has been on the slower boat recently and I am stating to receive a little acceleration on this boat. With the extra acceleration, I am wanting to hold on to the sides because it is a new feeling and experience. As the boat picks up speed, there are some bumps along the way that I am trying to overcome as well as some wind in my face.

The season I am coming out of is a slow paced and more relaxed life. It was a very beneficial season that I am happy for. While I was living through it, there were some difficulties. I wanted to constantly be doing something or engaging with my friends. It was a resting time for what God was doing within my life and what He is calling me to.

Callings for this season

The biggest thing that God has been teaching me and continues to teach me is rest. We live in a super fast paced society and this is counterproductive in the views of our society, but I am working on taking a Sabbath every single week. In this time, I would be able to spend time with Him, pray, and give my body a break from all that is going on. I will definitely keep y’all updated on this sabbath day.

There remains, then, a Sabbath-rest for the people of God; for anyone who enters God’s rest also rests from their works, just as God did from his. Let us, therefore, make every effort to enter that rest, so that no one will perish by following their example of disobedience.

Hebrews 4:9-11 NIV

I am now getting involved with several organizations (Fearless Movement, Fearless Women Ministries, ISMRD, Craniofacial Connection, and SNJ Millennials). Majority of these organizations I am attending events, but I am also volunteering my time in a few as well 🙂

I have started an instagram page for this blog! Woohooo!! I will be posting when I am posting these blogs as well as any updates for Achieve the Impossible Today. To follow the instagram, please click here.

Overall

This new season is an exciting time for me. I can’t wait to see what God does through me within this season. I am working on making a schedule, so I can make sure I post every week for this blog. I will also be making some adjustments to the website, so keep an eye out for some changes. That’s all for now.


Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

Seek Him Through Every Season Even If You Feel Great…

The last two weeks have been absolutely crazy. There have been many ups and downs. Great moments, but a few challenging points showed up along the way. I was not able to write last week because the time just evaporated out of thin air. I wish I could tell you where the time went, but I have no idea. Well… I actually do know where I spent the time. 🙂

Overview of Life

The two weeks consisted of not feeling the greatest, but also some incredible breakthroughs..
– emotional swings are gone
Fearless Women Ministry gathering
– 5 hour zoom (with 1.5 hour break)
– extremely upset at dentist w/ cavities (never happens, typically a champ)
– brain waves higher than typical, but a week later they are lower 🙂
– plant shopping & dinner w/ a friend
– Met people at Starbucks 2x
– memory lacking & super distractible
– went to a house fire church for 1st time
SNJ Millennials networking event

The past two weeks have been extremely busy as you can see above in the general overview. I am excited with all that is going on, but trying to get a hold of everything. For the past year, I have been laying low and focusing on neurofeedback and my brain. I have felt that I have been in a winter season. I have done other things, but very few activities.

In-depth View of the Weeks

During these few weeks, I have felt amazing and on top of the world. It is so easy to forget that He has brought us into these wonderful situations. He is always with us and we tend to not remember that. It is so important to be with Him when you are on that mountain top. A year ago, I was just trying to get through my day. There were so many challenges that I hope no one else has to go through. It was difficult and I relied on Him. I never thought I would have been able to do all the things I’ve listed a year ago…

There have also been some challenges during this time. I was extremely tired and had more headaches than I have. I had a few days of doing very little and just being on my phone. I wish I was seeking God, but I wasn’t. It is easy to sit in your feelings and not seek Him first.

House Fire Church Experience

When I went to the house fire church there was a lot of prayer and Holy Spirit. I absolutely loved it. One of the ladies there said that I am in a spring season and how there will be rain. Rain is a necessary thing in spring, so the flowers can blossom. That famous saying… “April showers bring May flowers”. She was saying to stay joyful even when the rain hits.

You make known to me the path of life; you will fill me with joy in your presence, with eternal pleasures at your right hand.

Psalm 16:11 NIV

The Spring Season

This resonated with me so so so much. I have felt that I have been in a winter season for the past year and that I am currently entering into a spring season. At the beginning of the spring season is when the rain comes. I am stepping into what God has been calling me to and there will be challenges, but I have to have the joy of the Lord. And we have the joy of the Lord when we seek Him.

I am excited for this new season of life and I am working on praying multiple times a day. I want to seek Him first above everything that I may have to do in a day. This world will say they are the most important, but truth is… nothing is as important as He is.

But seek first his kingdom and his righteousness, and all the things will be given to you as well.

Matthew 6:33 NIV

Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.

Seasons of Life are Constantly Changing

Have you ever been in a season that you are wishing to be over with? It is extremely easy to have this thinking and quite honestly, I have these thoughts more than one would think. Our culture has shaped us into going to the next thing once we achieve something. I really believe that this has shaped us into not appreciating and enjoying the moments we are in at this very point of life.

Last week, I posted about spring break and how many doors were just flying open. The truth is I have been in this very structured and scheduled season. Due to having neurofeedback 3x a week, 2 classes, and church on Sundays, my schedule had to be extremely structured. I don’t know about you, but I love a structured life. I am not one for surprises or changes.

My typical week looked like:
– Monday: neurofeedback @ 8am, relaxing, listen to church sermon, crew at night (every other Monday)
– Tuesday: 4.5 hours of homework (max w/ 5 min breaks included), open to meet w/ one person or food prep
– Wednesday: neurofeedback @ 8am, relaxing, chores
-Thursday: 4.5 hours of homework (max w/ 5 min breaks included), open to meet w/ one person
-Friday: neurofeedback @ 8am, relaxing, chores, baking
-Saturday: 4.5 hours of homework (max w/ 5 min breaks included), crew (every other week) or meet w/ one person
-Sunday: food shopping and church

As you can see, very structured and very timely. Neurofeedback makes me a tad tired and I structure my days like I do, so I do not overdo it. I have been strapped for time and not always feeling the greatest. Recently, there’s been a protocol difference in my neurofeedback treatment. This change has made all the differences in my world.

The school semester is about finished and I am almost finished two classes. After this semester, I will have a total of eight classes to go with finishing my degree in marketing with a minor in psychology. Super exciting times!! I am continuing to take classes in the summer and planning on taking a class in the fall. There are some new things entering into my life, so a new season is upon us!

I am excited for all the ways that God has been moving, but I also really try to take it one day at a time. It is extremely easy to get overwhelmed with things going on in the world, fearful situations, personal situations, and honestly anything that comes into your life. Remember to stay planted in His Word and He will take care of all your needs.

‘Jesus answered, “It is written: ‘Man shall not live on bread alone, but on every word that comes from the mouth of God.’ ” ‘

Matthew 4:4 NIV

Thanks for stopping by and reading this blog! Make sure to follow Achieve the Impossible Today, so you don’t miss a post. I am working on posting more consistently. If you have any prayer requests, feel free to comment them or contact me. As always, He can and He will help you through everything, we just need to seek Him first.